Screening
We are here to help individuals and families navigate the challenges of inherited cardiac condition, especially those who face it at a young age or have lost a loved one suddenly. Losing someone unexpectedly to a heart condition can be devastating, and we prioritise supporting families in these difficult times, particularly when the cause may be genetic. Even though we use the term “younger persons,” we are dedicated to helping people of all ages who may have inherited heart problems. By identifying it early, we can often prevent serious complications and improve quality of life. While a complete cure may not always be possible, there is so much we can do to help. With the right treatments—like medication, lifestyle changes, or in advanced cases, surgery—many people can live healthier, fuller lives. Our goal is to provide care, understanding, and hope to everyone who walks through our doors.
How to access screening
Access to the CRYP Centre, Tallaght University Hospital, Dublin is via referral from a Consultant or General Practitioner (GP) only.
People can be referred from anywhere in the country and there is no charge to the patient, regardless of income or insurance. While focusing primarily on adolescents and young adults, there is no upper age limit for referral to the Centre.
To contact the CRYP Centre:
Telephone : +353 1 414 3058
Email: CDYPClinic@tuh.ie
Information about Cardiac Risk
FAQ's
SADS refers to sudden, unexplained death when no cause is found after an autopsy. It’s often linked to electrical issues in the heart’s cells called “channelopathies,” such as Long QT Syndrome, Brugada Syndrome, or Catecholaminergic Polymorphic Ventricular Tachycardia (CPVT). These conditions aren’t visible during a post-mortem unless genetic testing is done, which isn’t a standard practice yet
- SCD: Sudden death due to a heart rhythm problem, often linked to conditions like blocked arteries or heart muscle disorders. Other potential causes include heart muscle disorders (also known as cardiomyopathy), structural heart defects that may have been present from birth (congenital heart conditions) and infection or inflammation of the heart muscle (myocarditis).
- SADS: A type of SCD where no clear cause is found after investigation.
- Heart attack: A blocked blood vessel in the heart, which may or may not cause sudden death.
- Cardiac arrest: When the heart suddenly stops due to a rhythm issue, leading to collapse or death. A defibrillator can help in some cases to stop the dangerous rhythm momentarily go back to its own rhythm.
The coroner usually orders a post-mortem, where a pathologist examines the body and heart. If the heart’s condition is unclear, an expert heart pathologist may be consulted. Families may also need screening for inherited heart conditions.
Yes, especially if the death is caused by an inherited heart condition. Immediate family (parents, siblings, children) should be checked first, and if needed, extended relatives can also be tested.
These symptoms might not mean heart disease but should be checked by a doctor:
- Family history of unexplained sudden death, especially under 40.
- Family members with inherited heart conditions like cardiomyopathy.
- Fainting or seizures during exercise or excitement.
- Palpitations that cause dizziness or collapse.
- Chest pain during mild exercise.
- Shortness of breath during exercise.
If you notice that you have a family history and/or signs mentioned, have a chat with your GP for further investigation and perhaps referral to an inherited cardiac condition clinic.
